Saturday, March 06, 2010

And I'm back in the game

Whew! What a whirlwind of a week.

First and foremost - my son is doing well! We've set up a caring bridge site so all of his family and friends can follow his progress and it truly is amazing to watch. I took a photo every day so the journey would be documented. Looking at him today - wearing a stylish hat and sporting a little goatee you would never guess he had surgery to remove a brain tumor just one week and one day ago.

Thanks to EACH and EVERYONE of you who read my post, who posted a comment, who sent me a message, who prayed, and who thought about my son during this challenging time. I'm tearing up right now just thinking about the incredible support you all - this large sewing related internet family - provided to us.

Please know that if I haven't responded to you yet, I will. I have read and treasured every response and some of you have gone through some heart-breaking experiences yourself. Thank you for sharing them with me.

This past week has been one that went by in a blur. Last Saturday we were just thankful he was alive and survived the surgery with what appeared to be no side effects.

We've since learned the tumor was a stage 3 anaplastic astrocytoma, about the size of a baseball. It is likely it had been a stage 2 (less aggressive) and growing for 10 years only recently becoming more aggressive. The experts do not know what causes brain tumors or why some people get them and others don't. Because they can be there for so long with no symptoms they're difficult to detect before they become stage 3 or 4 tumors.

The surgeon removed as much as he could but had to leave behind some that was close to the speech area of the brain or risk damage to his speech. He'll undergo radiation and chemo for six weeks targeting what was left behind.

We've been hearing from medical staff how surprised they were that he hadn't suffered seizures or arrived at the hospital in a coma. They've also said that they expected to see side effects after the surgery is amazing, and he'll need no physical or speech therapy.

Late Friday night, when we were finally able to see him in ICU after his surgery, we walked into his room only to witness him cracking jokes with the nurse. In between drifting in and out of consciousness, and of course he doesn't remember any of that. My son's known for his optimism and sense of humor and at that moment we knew he would be okay.

That's not to say he doesn't have a long, tough road ahead of him, because he does. The good news is that he has no problems with speech, motor skills, memory loss, or vision. It was a bit hard for me when they first took the dressing off of his head as I was not prepared for the large incision held in place with staples every 1/8" or so. Today, barely a week out of surgery, you'd never know what he'd just been through. With a hat on, the only evidence is a black eye that is healing quickly.

He has a large network of very close friends and the love and support they've provided to him this past week just warms a mother's heart. They have visited him constantly, bombarded him with texts and emails, provided little gifts to keep the boredom at bay, and are in the process of setting up a benefit to assist him with the medical expenses.

We continue to praise God and can see that His hand has been all over this. While we don't understand why this happened - and believe me I've had many of those moments - I do know that God is still sitting on His throne and I know that He loves my son so much more than I do - and the love of this mom for her kids is pretty darn strong.

Thanks again my sewing and internet friends. As life gets back to normal - as normal as it will be for now - I do believe I'll be able to find some time for my favorite stress reliever: sewing. Pin It

23 comments:

  1. So glad to hear all is going well. You all will continue to be in my thoughts and prayers.

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  2. Thank you so much for letting us know that your son is doing so well! Praise God that all is well!

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  3. So glad to hear this good news. Blessings to your son, to you and your family.

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  4. sewshy1:43 PM

    This is wonderful news. Will continue to keep your family in my prayers as he recovers.

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  5. Thanks for taking a few minutes to share an update. I'm so glad to hear that he's recuperating well and that you have found some comfort, too. You and your family will remain in my thoughts and prayers.

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  6. Thank you so much for the update and the news is good. Prayers for his continued recovery and for all of his family and friends.

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  7. Good news. I hope his recovery and treatment continues along the same lines.

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  8. What wonderful news! In my church we often recite a call and response. The minister says, "God is good" and the congregation responds, "All the time". Usually, it's an automatic response. But when we stop and think about what God has done, that rote response isn't enough. Your son's recovery has shown me just how good God is. May God continue to bless you and your family.

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  9. This is indeed a great news. I am so glad to hear this, and I pray that God heals him completely.

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  10. Whew! I've been praying for you and your son. I will continue as he faces the chemo, etc....

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  11. While the best news would be that he didn't have to deal with this at all, it does sound like things are going wonderfully! I am praying for his continued improvement.

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  12. I am glad to hear the good news. I will continue to keep your family in my thoughts

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  13. What a precious gift in life we've all been given. It's our choice what we do with our gift. The ultimate goal is to embrace it with a heart filled with love, laughter and smiles. Our path we take in life are filled with lessons. Lessons to teach us how precious our gift is. Some lessons are harder than others. The hardest lessons are the most rewarding. Seeing through to the other side, which you have done through this whole process, you and your son know you will arrive with a stronger bond loving your gift given at birth. You are a very strong, loving, caring, positive person. Keep up the good work and the rewards will be great!
    With much love, hugs, smiles and prayers...Cindy

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  14. Somehow I missed the first post! What a week! Glad the surgery went well, and I'll be praying with you that the recovery is swift and further treatment successful!

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  15. I am glad to hear your son is doing well... I hope for the best and hope to see more of your sewing post soon...

    For now, family comes 1st...

    May God be you and your family always.

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  16. I'm relieved to hear how well your son is doing. It really is disconcerting to see all the tubes and monitors and the huge incision after surgery - I think that was the scariest part for me when my Mom was in the hospital.

    I hope that your son continues to progress so well. I'll keep you all in my thoughts.

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  17. Wow! I've been behind on my blog reading, and my goodness, what you've been through.

    I'm so thankful that he is doing so well, and youth and health certainly are beneficial!

    I'm sure he'll continue to do well.

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  18. Thank you for keeping us posted, Sharon. I'm glad your son is doing so well.

    Continued good wishes are coming your way! Keeping your family in my thoughts.

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  19. hi sharon
    i am glad that the first hurdle has been taken by your son (and your family, of course), i hope he responds well to his further treatment.
    all the best to you all
    barbara

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  20. Sharon, I am so happy to hear your son is doing well. I can imagine this must be such a frightening time for all of you. You are all in my thoughts.

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  21. Oh my goodness! I am just catching up and read of your past week. What a difficult scary time for you! (and your sone of course)
    I am so glad that the surgery went so very well and will keep your son in my thoughts as he undergoes the next step of treatment.
    Best wishes to all!

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  22. I'm so glad to hear your son is doing better. Wow. That must have been extremely stressful, to say the least.

    A friend of mine had a brain tumor removed as well, and three years later, her scans are clean. She's fully recovered from it. I'm not sure what type of tumor or cancer it was...I know there are many types.

    Take good care. I enjoy tuning in with you to see your latest projects. Best, K

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  23. Thank you so much for letting us know that your son is doing so well! Praise God that all is well!
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